Our Research Advisory Committee
The Research Advisory Committee (RAC) is responsible for advising Hear and Say Research and Innovation on the ethical and research design aspects of proposed projects. The RAC is also the organisation’s “gatekeeper” granting permission for researchers to conduct studies through Hear and Say and approach relevant participant groups, including Hear and Say children, families, and/or staff. Once permission has been granted to conduct research through Hear and Say, the Committee ensures that all research is consistent with the approved project protocol.
The RAC is not a National Health & Medical Research Council (NHMRC) registered Human Research Ethics Committee (HREC) but strictly adheres to the standards outlined in the National Statement on Ethical Conduct in Human Research 2007 (Updated May 2015). Members of the RAC include researchers and clinicians, both internal and external to Hear and Say, with expertise and interest in paediatric hearing loss.
RAC approval is based on a submitted protocol’s ethical aspects, proposed timeframe, and research design. Other important considerations include whether the proposed research:
- meets Hear and Say values, vision, and strategy;
- involves an appropriate child population;
- impacts on children, parents, staff;
- overlaps with other projects;
- is of benefit to Hear and Say;
- has financial implications for Hear and Say.
Accordingly, researchers wishing to apply to conduct a study through Hear and Say should ensure that their protocol carefully addresses each of the above aspects.
Are you conducting a research project?
Applications from external researchers to conduct studies in collaboration with Hear and Say are welcome. Please contact the Hear and Say Research and Development Manager, Dr Wendy Arnott by emailing email@example.com to discuss your proposed project.
At 9.10pm on 24 October 2013 our beautiful daughter Maia was born.
The moment of elation was short-lived as we immediately noticed her left ear was missing. I frantically looked to the medical team around me for answers but received none.
Panic set in as we waited 4 days in hospital for an ENT to explain her condition, by which point we already had all the answers from Simone, who runs the Microtia and Atresia Program at Hear and Say.