Microtia and Atresia
Microtia and Atresia are lesser known congenital birth defects that can impact on a child’s hearing. Hear and Say are Microtia and Atresia experts and have a range of support services available for affected children and their families.
Hear and Say established the Australian Microtia and Atresia Support Centre and have a Microtia and Atresia Program.
Established in 2008, the Australian Support Centre is one of a kind in Australia. It brings together experts and families to help children affected through support, education and research.
Hear and Say also hosts the only annual Australian conference at our Brisbane centre. World leaders and experts in this field come together for a weekend of workshops, conferences and consultations on this rare condition. This conference aims to support and educate both parents and professionals.
To contact the Australian Support Centre call (07) 3850 2111 or email firstname.lastname@example.org
Definitions of Microtia and Atresia
This congenital disorder occurs in 1 in 6,000 births world-wide. It causes a deformity of one or both ears in which the outer ear is underdeveloped or absent. Microtia is almost always accompanied by Atresia because the baby’s outer ear and the ear canal develop together during pregnancy.
Atresia is the absence of an external ear canal and, in many instances the ear drum and ear bones can also be affected. This means that as there is no canal for sound to travel through, these children are born with a conductive hearing loss.
At 9.10pm on 24 October 2013 our beautiful daughter Maia was born.
The moment of elation was short-lived as we immediately noticed her left ear was missing. I frantically looked to the medical team around me for answers but received none.
Panic set in as we waited 4 days in hospital for an ENT to explain her condition, by which point we already had all the answers from Simone, who runs the Microtia and Atresia Program at Hear and Say.